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Rare Disease Day
Results: 254

#	Item
151	FDA Rare Disease Patient Advocacy Day, Breakout Presentaion Add to Reading List Source URL: www.fda.gov Language: English Medicine Pharmaceutical sciences Food law Pharmacology Orphan drug Orphan Drug Act FDA Fast Track Development Program Federal Food Drug and Cosmetic Act Food and Drug Administration Pharmaceuticals policy Health
152	Annual Report 2012 Dear NORD Members and Friends: We are proud to present this end-of-year report to you briefly Add to Reading List Source URL: rarediseases.org Language: English - Date: 2013-10-28 15:42:10 European Organization for Rare Diseases Rare disease Health economics Patient advocacy Orphan drug Canadian Organization for Rare Disorders Nord National Institutes of Health Health Medicine Rare Disease Day
153	SAVE THE DATE! Join MassBio, the Shwachman-Diamond Syndrome Foundation, member companies, patient groups, patients and legislators to recognize Rare Disease Day. Thursday, February 28th Add to Reading List Source URL: rarediseaseday.us Language: English - Date: 2013-06-21 13:08:04 Health Rare disease Patient advocacy Medicine Medical ethics Epidemiology Rare Disease Day
154	Pathways: October 2013: No. 3 A publication of ISMRD Order your ISMRD calendar now! Add to Reading List Source URL: www.ismrd.org Language: English - Date: 2014-09-02 17:40:48 Epidemiology Rare disease Rare Disease Day Orphan drug Pharmaceutical industry Chronic Health Medicine Pharmaceutical sciences
155	Pathways: July 2013: No. 2 A publication of ISMRD International Rare Disease Day 2013 Add to Reading List Source URL: www.ismrd.org Language: English - Date: 2014-09-02 17:42:41 Medicine Orphan drug Pharmacovigilance Rare disease Rare Disease Day Pharmaceutical industry Pharmaceutical drug European Medicines Agency Clinical trial Pharmacology Pharmaceutical sciences Health
156	Global Genes™ 2014 Foundation Alliance and Patient Advocacy Programs 1 Add to Reading List Source URL: globalgenes.org Language: English - Date: 2013-12-17 13:19:49 Patient advocacy Rare Disease Day Medicine Healthcare Health advocacy Epidemiology Rare disease Health
157	Pathways: 2009: No. 2 September 2009 A publication of ISMRD Add to Reading List Source URL: www.ismrd.org Language: English - Date: 2014-09-02 17:36:04 Lysosomal storage disease Rare disease Glycoproteinosis National Institutes of Health Pseudo-Hurler polydystrophy Sialidosis Disease Rare Disease Day Alpha-mannosidosis Health Medicine Epidemiology
158	Update from the National Niemann-Pick Disease Foundation Articles in this e-News NNPDF 2011 Annual Board Meeting Recap Pentchev Postdoctoral Research Fellowships Request for Applications Add to Reading List Source URL: www.nnpdf.org Language: English - Date: 2011-05-11 14:23:16 Niemann–Pick disease Rare Disease Day Health Lipid storage disorders Rare diseases
159	Rare Disorders February 2011 Alone we are rare. Together we are strong.” Slogan of Rare Disease Day Add to Reading List Source URL: www.azpromisingpractices.com Language: English - Date: 2014-01-07 13:47:17 Genetics Medical ethics Genomics Orphan drug Rare disease Genetic disorder Genetic testing Genetic discrimination Human genome Biology Medicine Medical genetics
160	High School Curriculum for Rare Disease Day 2014 Introduction Thank you for using this short-term curriculum about rare diseases for high school biology and health classes. This curriculum is intended to be used on Rare Add to Reading List Source URL: rarediseaseday.us Language: English - Date: 2013-11-25 14:21:52 Education Critical pedagogy Educational psychology Philosophy of education Epidemiology Rare disease Rare Disease Day